Parkinson's
 

Parkinson disease is a complicated medical condition that presents differently depending on the patient. Different populations and environments experience Parkinson disease in strikingly different ways and the one million people diagnosed in the U.S. are dispersed unevenly throughout the country not unlike the physicians who are best qualified to treat them. Unsatisfactory clinical outcomes are everywhere, even among some movement disorder specialists. The obvious reason for this is that the disease is so complex that it’s presentation can be different in a large proportion of the patients in a physician’s practice. For example, on average only twelve percent of a movement disorder specialist’s practice is comprised of Parkinson’s patients. In fact, a consumer advocate website called amino.com includes movement disorder specialists who treat only one or two PD patients per week. This is not because they are incompetent physicians, but just the opposite, they are sub specialists in other diseases such as Huntington’s, Tourette’s or Dystonia. In addition, not all specialists are alike as some are responsible for the overall treatment of the patient and therefore will be listed as the treating physician by consumer advocate sites while others may have lower ratings that do not reflect the number of patients that they actually consult upon over the course of a year. Do your homework and ask for advice about who is the best doctor for your particular situation. Look here to see a list of the top Florida doctors ranked by patient volume. 

What we know for sure is that high rates of successful clinical outcomes correlate positively with high PD case volumes. It makes sense that the doctor will deepen his or her level of experience as the number of cases he or she treats increases. Commonalities come to light, even in some of the more rare presentations of the disease. Extensive continuing education is, of course, a given. We need to find more ways to support high volume, specialized clinical Parkinson practices to serve those patients who require diagnosis and maintenance treatment that includes ParkinsonNet-style multidisciplinary services. As the founder of Parkinson charity, Neuro Challenge, I see humanitarian endeavors coupled with community and business collaboration as the solution that can make this happen right now.

Today, multi-disciplinary Parkinson care from Centers of Excellence is available to about ten percent of the total Parkinson population. Another ten percent of the population is serviced by high volume, specialized physician practices like ours. The remaining 80 percent are managed by movement disorder specialists, general neurologists, internists and general practitioners. Some of these physicians are well versed in the disease but many are not.

Multidisciplinary, high volume, specialty Parkinson clinics require public and private financial support if they are to continue to provide excellent care and serve as examples for other clinics and local charitable organizations who want to improve PD care in their communities..

Eight hundred thousand PD patients in the USA do not have access to the quality care we have in Sarasota, Florida. Our view of our ability as just regular people is far too limited to allow us to believe that we have the power to affect disease and that we can allow that power to transform the way we treat disease. In reality, all the power is ours.

By Doreen T. Sutherland, MBA

Founder, Neuro Challenge Foundation for Parkinson’s




 


Comments

03/31/2016 4:18am

The first symptoms of the disease are very important and usually go unnoticed. Often relatives and friends of a person first pay attention to the reduction of the expression of the face, slowness of movements, especially when dressing, eating and walking.

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04/16/2016 6:22am

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04/16/2016 9:15am

Those who smoke , can feel this disease like shaking of hands , it is actually because when you don’t take that much amount of nicotine that you are used to. It is not very common, not for the smokers but it can be anyone who have this disease but majority smokers and large amount of nicotine in takers feel that.

The first thing the other people notice in us are our face expressions. We took special care of our skin. Most women do take care of their skins, I think men shroud keep their skin active and take care of it as women do.

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05/27/2016 2:54am

Parkinson decease spread mostly in men and this is very dangerous that are found in U.S.A. Those who are suffer from parkinson, they should to care more and do treatment from a special doctor. Best supplement food items are available on our world class online store at very affordable price for your physical fitness.

Parkinson disease is a quite serious disorder. I'm dissappointed, that many doctors who study the way of its treatment can't give an appropriate help to people who sugger from this. This sutiation should be changed!

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